Hello

Hi. My name is Eve Cawley. I'm married to a wonderful man, Terry. We don't have any kids.

In March of 2012, at the age of 38, I was diagnosed with an incurable Chronic Kidney Disease called Idiopathic, Primary FSGS or Focal Segmental Glomerulosclerosis. FSGS is a disease that causes lesions on the kidney. These lesions allow massive amounts of protein to leak through the walls of the kidney and into the urine, creating a "foamy" texture.  FSGS leads to End Stage Renal Disease or ESRD.

Although FSGS is rising in the number of patients diagnosed annually, it is still considered a rare disease. Approximately 5,600 people annually are diagnosed and since there is no cure, doctors can only treat the symptoms. A lot of the discomfort we feel as patients is most often the result of the medications taken to control the symptoms. Such medications are Prednisone, Cyclosporine, Cellcept, Rituximab and other such immunosuppressants and steroids.

Ultimately, once the disease has run it's course, I will have to go on dialysis before recieving a kidney transplant.  However, in more than 60% of FSGS patients, the FSGS recurs in the newly transplanted kidney and the cycle of disease begins anew.

This website is geared towards raising awareness for not only FSGS and Chronic Kidney Disease, but also to offer support to family and friends.

Visitor's notice

On this site, I will share with you my before and after pictures, a blog detailing my endless battle with not only the disease's symptoms, but the medications and their side effects. And lastly, you'll get the opportunity to see how I have had to change my diet to prevent further damage to my kidneys and waylay some of the symptoms, such as edema through nutrition.